What does the project involve?
In the UK a growing number of people are living with conditions like diabetes, heart failure or problems with breathing. It is important that the NHS can provide joined up and timely care for the growing number of people affected.
Our project aims to make healthcare better for people with long term conditions by making sure hospital doctors, GPs and community services work more closely together. To do this, we’re designing and testing a ‘Complex Long-Term Conditions Service’.
We’re forming a group of people with first-hand experience to share their thoughts and help inform the design and delivery of this service.
What will a member be involved in?
We are forming a network of people with first-hand experience who can provide advice in a number of ways.
- One way is to join in-person group meetings to share your experiences and ideas on the project. We expect to hold 3-4 meetings over 6 months, with a combination of in-person and virtual sessions.
- Another way is through a direct conversation. This will be an informal and individual, one-off phone call or on-line meeting with a member of the programme team
- The third is to provide your thoughts over email. This might be feedback on the programme; or advice on communications and messages to be sent to patients, such as letters and leaflets
Who can get involved?
To take part, you are:
- An individual with lived experience of two or more long-term health conditions (including but not limited to diabetes, heart problems, respiratory conditions (such as COPD) or high blood pressure). We would also welcome those with lived experience of acting as a carer for someone with multiple long-term conditions.
- Currently living in one of the following London boroughs: Barnet, Camden, Islington, Haringey or Enfield.
- Available for up to 1.5 – 2 hours a month over the next 6 months, starting in November 2024.
- No previous experience is needed, just an interest in sharing your views and experiences to improve health and care.
Reimbursement
Participation for in-person or on-line meetings will be reimbursed at £25.00 per hour.
Reasonable and necessary expenses, including travel costs for in-person meetings, will be reimbursed.
Contact
For more information or to apply to the lived experience advisory group, please contact the North Central London Health Alliance team on: nclha@uclpartners.com
Please register your interest by the end of the day on Friday November 8 2024.
If you have any questions or concerns about participating, please let us know and we can ensure we accommodate your contribution in a way that’s best for you.