Useful links

We have put together a list of some links we use regularly in patient insight and involvement work. If there are any others you can think of that we may have missed then email us.

The Beryl Institute: Global community of practice dedicated to improving the patient experience through collaboration and shared knowledge

The Coalition for Collaborative Care: Brings together people, including people with long-term conditions, and organisations from across the health, social care and voluntary sectors that are committed to making important changes a reality

Health Expectations: International journal of public participation in health care and health policy

The Health Foundation: Measuring patient experience

The Health Foundation: Person-centred care made simple: What everyone should know about person-centred care

The Health Foundation: Person-centred care resource centre Information and support for a range of health issues from seeing and hearing people’s real life experiences

HealthUnlocked: Social network for health

Healthwatch: National consumer champion in health and care

Innovation Unit: Innovation partner for public services

Institute for Healthcare Improvement – Video Library: Quick instruction on a wide range of health care improvement topics

invoDIRECT: Directory of networks, groups and organisations that support active public involvement in NHS, public health and social care research

INVOLVE: Support public involvement in NHS, public health and social care research

The King’s Fund – People in control of their own health and care: The state of involvement

LVSC London Voluntary Service Council: Collaborative leader of London’s voluntary and community sector

The National Co-ordinating Centre for Public Engagement: Helps inspire and support universities to engage with the public

National Voices: Coalition of health and social care charities which represent a diverse range of health conditions

NESTA – At the heart of health: Realising the value of people and communities

NHS Choices: Information service that helps to put people in control of their healthcare

NHS Citizen: Enabling citizens to influence NHS England decision making

Patient Experience Journal: International, multidisciplinary, and multi – method, open-access, peer-reviewed journal engaging research, proven practices and a range of perspectives, inclusive of patients and families, focused on understanding and improving patient experience

Patient Experience Network: Independent organisation that welcomes all involved in delivering the patient experience

Patient Opinion: Independent site about patient’s experiences of UK health services

Research Involvement and Engagement: Interdisciplinary, health and social care journal focusing on patient and wider involvement and engagement in research

ThinkWell!: Research charity started by a group of doctors, patients, health care service users, and health researchers to create a platform to enable members of the public to join together to plan and undertake health research

UCLPartners patient insight and involvement newsletter archive: Read all the previous editions of our regular newsletter

The Wellcome Trust: Global, charitable foundation dedicated to improving health by supporting bright minds in science, the humanities and social science, and public engagement