End of life care education programme

Our end of life care project aims to improve the care that patients and those important to them experience in the last weeks and days of life.

UCLPartners’ end of life care (EOLC) programme has been commissioned by Health Education England to develop and deliver innovative educational resources to train clinical and non-clinical staff in the delivery of high quality end of life care across different settings.

Our latest suite of educational resources, What’s Best For Lily?, has been created to give care home staff the knowledge and skills needed to deliver excellent care for residents at the end of life. This includes an 11-minute teaching film with a supporting modular lesson planning guide containing learner activities and discussion topics.

The What’s Best For Lily? film and educational resources are available to watch and download below.

The challenge

The number of people living longer with increasingly complex health problems is growing, particularly the older population living in care homes. For example, around 66% of care home residents are living with dementia. This trend highlights the importance of end of life care and the need to take account of patients’ preferences in end of life care decisions. The Leadership Alliance for the Care of Dying People’s 2014 report One Chance To Get It Right recognised that staff caring for dying people often do not have the skills and knowledge to deliver excellent end of life care. This is particularly true for care home staff.

Progress to date

  • 11-minute What’s Best For Lily? teaching film and accompanying Lesson Planning Guide created
  • Implementation pilot project delivered in North Central London from September 2017 to June 2018
  • Educational resources made available to download free of charge in June 2018

What we’re doing

What’s Best For Lily? shows the last months, days and weeks of a patient’s life through the eyes of a care home resident with dementia, her son, and a carer.

This film shows examples of good care and poor care, helping care home staff to think about how they can provide the best end of life care for residents they look after.

Accompanying resources support facilitators to deliver teaching sessions and activities on:

  • Recognising gradual and sudden deterioration
  • Asking about a resident’s wishes and making a plan of care
  • Prompts to review before calling 999
  • Supporting loved ones and involving them with care
  • Dealing with the death of a resident

UCLPartners is working with Healthy London Partnership in 2018/19 to roll out What’s Best For Lily? and support care homes across London to deliver excellent end of life care for residents. This follows a successful implementation pilot of the educational materials conducted with care homes in Camden and Enfield using a champion trainer model.

Resources

Watch the What’s Best For Lily? teaching film on YouTube:

UCLPartners has also developed suites of educational resources supporting high quality end of life care in other clinical settings.

You can read the case study about the resources here, or watch the accompanying educational videos on YouTube:

  • Milestones (care in the last days of life in hospital)
  • You Matter (end of life care in the community)

Leadership and contacts

End of Life Care team