This webinar will offer you the opportunity to learn what Patient and Public Involvement (PPI) is and will provide an insight into how it could improve the quality of your project and strengthen its relevance and impact. You will get exposed to different perspectives on PPI in advanced therapies research (new medical products that use tissue engineering, cell and gene therapies) and will hear about:
- Involving patients in epilepsy gene therapy research
- Taking part in a haemophilia gene therapy clinical study
- Becoming a patient representative in blood cancer research as a former molecular biology scientist and Clinical Research Manager
- Including patient perspectives in lab-based research for head and neck regenerative cell therapies
12:30-12:35 – Welcome and introduction of the TINs (Asha Recino, Therapeutic Innovations Networks Coordinator)
12:35-12:45 – Patient and Public Involvement (PPI) in Research – An introduction (Linda von Nerée, PPI Lead at NIHR Blood and Transplant Research Unit (BTRU) in Stem Cells and Immunotherapies at UCL)
12:45-12:55– PPI engagement and benefits in gene therapy research (Matthew Walker, Consultant Neurologist at the National Hospital for Neurology and Neurosurgery)
12:55 -13:05 – Patient experience and involvement in hemophilia gene therapy studies (Luke Pembroke, Gene Therapy Patient)
13:05 -13:15 – Patient involvement in stem cell and immunotherapies for blood cancer (Gillian Murphy, Patient & Public Research Panel Member, Blood and Transplant Research Unit at UCL)
13:15- 13:25 – PPI in pre-clinical regenerative medicine research (Nick Hamilton, NIHR Clinical Lecturer, UCL)
13:30 – 14:00 – Panel discussion with questions from the audience
Why should you attend? The aim of this event is to increase knowledge about patient experience and active involvement of patients and members of the public in the early development of cell & gene therapies and regenerative medicines across UCL.
Intended Audience: The event is open to all, and is specifically aimed at UCL researchers working on Cell & Gene Therapies and Regenerative Medicines. We would also like to encourage external participation as we provide insights into the work of the TINs to accelerate the translation of biomedical discoveries into viable therapeutics.
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