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Patient involvement and engagement in the AHSC

We believe that patient experience must be central to the planning, development and delivery of health research and NHS services.

Patient and public involvement and engagement (PPIE) takes place across our Academic Health Science Centre (AHSC) to ensure our activities are robustly informed by patient and public insights and responsive to their needs.

We harness patient and public expertise across the partnership to align initiatives and share best practice, including:

Our overarching and uniting aims are to:

  • engage under-represented groups and individuals
  • find new mechanisms for engagement
  • provide comprehensive guidance to our members (e.g. training, toolkits, and 1:1 support).

UCLPartners PPIE Committee

The UCLPartners PPIE Committee brings together PPIE leads from across the six functions within the UCLPartners academic health science partnership, together with patient partners, to:

  • identify and maximise opportunities for beneficial collaboration in PPIE activities
  • share insights and learning
  • ensure strategic alignment of PPIE approach and opportunities.

The overall objective is to collectively ensure that research, service design, higher education and innovation across the partnership are robustly informed by patient and public insights and responsive to patients’ needs. The Committee meets quarterly and reports into the AHSC Executive Group.

Our PPIE teams and projects

Examples of our patient and public involvement and engagement work include:

NIHR Barts Biomedical Research Centre

NIHR Moorfields Biomedical Research Centre

  • The patient and public engagement team provides PPIE support and advice for Moorfields and the UCL Institute of Ophthalmology researchers, including offering PPIE training.
  • Patient and public groups include:
    • PPIE Research Community: A group of volunteers who help the Biomedical Research Centre with patient and public engagement across a range of clinical research areas.
    • BRC PPI Advisors: A group of patients/public and carers who are involved in specific areas of strategy/governance/projects in the Biomedical Research Centre.
  • For more information please visit the NIHR Moorfields Biomedical Research Centre PPIE website

NIHR GOSH Biomedical Research Centre

  • Involving and engaging patients and members of the public is essential to the research carried out at Great Ormond Street Hospital for Children NHS Foundation Trust (GOSH) and the UCL Great Ormond Street Institute of Child Health (GOS ICH).
  • Groups and activities include:
    • Parent and Carer Advisory Group (runs four times a year)
    • Engagement sessions in the hospital, such as marking Rare Disease Day and International Clinical Trials Day
  • The PPIE team supports researchers in their work by offering:
    • One-to-one support and advice on ensuring that patients and the public are involved in their research at all stages and for planning and running their involvement sessions
    • One-to-one advice for researchers on the PPIE sections of their funding applications
  • For more information please visit the GOSH Biomedical Research Centre PPIE webpage

NIHR UCLH Biomedical Research Centre

  • Provides PPIE support and advice for UCLH and the UCL researchers. Runs workshops throughout the academic year for researchers looking to improve their PPI skills.
  • Patient and public groups include:
    • PPI Patient Network: These are individuals who volunteer who help the Biomedical Research Centre (BRC) support researchers by getting involved in their research projects.
    • Covid PPI Advisors: A group of patients/public that has been set up and have played a key role in turning around PPI work on COVID projects at a fast pace.
    • PPI Data Network: A group of patients/ public working on PPI projects addressing issues around the the use of NHS patient data in research.

UCL Public Engagement Team  (Part of UCL Culture)

More information

  • We will be regularly updating this page with more information about patient and public engagement activity across the AHSC.
  • If you are a patient, carer or member of the public who would like to get involved, or if you work in research or healthcare and would like our support, please contact the UCLPartners Patient Insight and Involvement team on PPIE@uclpartners.com